I was first diagnosed with kidney disease, I was
overwhelmed. As I searched the Internet, I found
a lot of technical information written for the medical
community and continued to feel overwhelmed.
I later found a kidney newsgroup, which shared a lot
of good information about dialysis treatments and
transplants, but I wasn't ready for that intense level
of information since I was in the early stages of my disease.
I now have reached the point where I want to be active
in educating myself concerning kidney disease, get
involved with kidney-related support groups, and work to have better laws and regulations that affect
This is my
first experience with developing a community web
site. I hope you find it beneficial. I
plan to refine it as I learn more about the kidneys
and the needs of
other kidney patients.
I would like to find individuals that can contribute
to a DEFINITION LIST written in layman terms
explaining the various kidney diseases and commonly
used terms. Please
respond via e-mail or go to my Feedback Page (see
below). I have started my Definitions Page, but
do need more contibutions (see below).
There are some general, but brief, definitions about
kidney diseases at the Web
of Care site (sometimes very slow to load). The
best thing about this web site is that It has a
section about care givers of kidney patients
which I think is very valuable.